Bernard-Soulier Syndrome Organization

More Research, Faster Cure

Bernard Soulier Syndrome Organization (B-SS Organization) is working for people with Bernard-Soulier Syndrome and their families to secure the best possible care, treatment and support.

The organization was established in 2007 and is a non-profit corporation in the USA of and for people with B-SS. We provide information, advice and support services and we advocate and campaign to secure the best possible care and treatment.

We want to let you know that 100% of the proceeds from donations go towards promoting research for Bernard-Soulier Syndrome. We are an all-volunteer organization and don't charge any operational expenses from the donations.